Advocacy and support- Covid 19 response - Prosiect
Trosolwg o'r prosiect
The funding will be used towards staffing costs for their Support and Advocacy service for sufferers of Mucopolysaccharide diseases and their families. This will allow them to continue the service as they transfer all their support to online/phone-based support for both sufferers and parents and carers. Support will include member visits and clinics being delivered remotely everyday between the hours of 7am and 10pm and a regularly updated page on the organisation website offering specific guidance.