Rare but not alone- Connecting the MPS Community - Prosiect
Trosolwg o'r prosiect
The project will use its funding create a more connected community by providing support to families opportunities to build relationships and encourage peer support while creating a platform for those most affected to shape the services that matter to them. It hopes to support people in feeling less isolated improving independence and make people feel more informed about Mucopolysaccharide (MPS) and related Lysosomal Storage Diseases.