Society for Mucopolysaccharide Diseases - Prosiect
Trosolwg o'r prosiect
The UK wide organisation provides needs led support to families affected by MPS diseases, which are 25 rare and incurable genetic conditions. They used the £636 grant on a social event in Belfast for a group of people with Morquio (MPS IVA), which is a rare, inherited degenerative disease, and their carers.