Fibrodysplasia Ossificans Progressiva (FOP), which is disabling genetic condition for which there is presently no treatment or cure. The organisation will use the funding to provide a three day event for FOP patients and their families, where they will be able to meet with the world's leading FOP clinicians for private consultation, hear from world-wide FOP experts on treatment developments and be brought up to date on the latest FOP research and news on clinical trials.