Family care and interactive support service - Prosiect
Trosolwg o'r prosiect
This project will improve the quality of life for those affected by Niemann-Pick Disease type C (NPC) by providing support and reducing the isolation experienced by families. NPC is an extremely rare genetic disorder characterised by neurological problems that become severe and limiting at late stages of the disease. NPC is always fatal, and there are currently 72 families in England affected. This project will provide support from advice over the phone to home visits and liaising with care professionals.