Supporting Families with Children with Undiagnosed Genetic Conditions
Supporting Families with Children with Undiagnosed Genetic Conditions - Prosiect
Trosolwg o'r prosiect
This project provides support for families across England with children with undiagnosed genetic conditions. The project will develop a hub for information and support, with a focus on mutual encouragement, offering families opportunities to share knowledge, experiences, difficulties and solutions. Families will be offered opportunities to share knowledge, experiences, difficulties and solutions through a newsletter, an annual meeting and by linking families for mutual support.