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Project overview
ALD life promotes the relief of sickness of people with adrenoleukodystrophy, adrenomyeloneuropathy, their parents and carers, promotes medical research and aims to advance public education of the above conditions. Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder. In this disorder, the fatty covering (myelin sheath) of nerve fibres in the brain is lost, and the adrenal gland degenerates, usually leading to progressive neurological disability and death.