Poland Syndrome Patient Register - Project

Project overview

The funding will be used towards the salary of a project manager to oversee activities for people with Poland Syndrome and their families. The project will bring this isolated community together, reaching out to families across the UK, building a community for people to share their lived experiences, giving access to information and knowledge.

Grant amount: £10,000
Organisation name: Poland Syndrome Patient Register
Grant date: 13 March, 2020

Duration: 31 May, 2020–30 May, 2021

Recipient organisation

Organisation name: Parents Information Portal
Type: Not-for-profit company
Charity number: EW01784
Company number: 7777069
Location: Davenport and Cale Green, Stockport, Stockport

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