1p36 Family Conference 2021 - Project

Project overview

The funding will be used to run the first national conference for families/carers of children suffering from 1p36 deletion syndrome, a chromosome disorder which causes severe disabilities and other health problems. The aim of the conference, which can be attended by the children as well as their parents/carers, is to bring people together to share experiences and learn new therapies and coping strategies to enable the children to have better lives.

Grant amount: £10,000
Organisation name: 1p36 Family Conference 2021
Grant date: 13 March, 2020

Duration: 7 August, 2020–9 September, 2021

Recipient organisation

Organisation name: The 1p36 Family Trust
Type: Charitable incorporated organisation (CIO)
Charity number: 1181988
Location: Stone Castle, Dartford, Dartford

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